Upon hearing news that their unborn son will live only a few days after birth due to a condition known anencephaly that leaves him without parts of his skull and brain, Philadelphia couple Dan and Jenna Haley made him a bucket list, taking him to all the sights and locations they wanted to share with him, according to ABC News.
“We learned of his condition on April 10,” Dan, 25, told ABC News. “We were shocked and devastated. It's definitely not something anyone ever expects to hear. As we learned more about his diagnosis we experienced pretty much every emotion you could imagine.”
Eventually, the devastated couple “accepted his condition for what it was, and decided to give Shane all the love we could while we have him with us," said Dan.
Life expectancy for infants born with anencephaly can be extremely short, ranging from a few hours to a few days. Where most Americans would have aborted, the Haleys chose exactly the opposite.
“When we found out that Jenna was expecting, we would often talk about all of the places that we wanted to go as a family after Shane was born,” Dan recalled. “After his diagnosis and understanding that almost 100 percent of babies with anencephaly die shortly after birth, we decided to start visiting the places we had wanted to go with him while he was living in his mother's womb.”
Since embarking on the quest, the Haley's have visited the following with their son Shane: a Phillies game, New York's Times Square, the Statue of Liberty, and have even enjoyed a Philly cheesesteak at the famous Geno's in Philadelphia. Their Facebook page titled "Prayers for Shane" now has 175,000 followers.
“One thing we would want people to take away is that each human life is so valuable and that it's so important to live each day to its fullest potential,” Dan explained. “Whether we live one hour or 100 years, our time here is limited. Make sure to enjoy the little things in life and hug those who mean the most to you. Choose to make the most of the hand you’re dealt and always look on the bright side of every situation and the world will be a better place because of it.”
Shane is due to be born on October 12.




